标题： 晚期慢性肾脏病咨询中患者的生活质量和感知护理质量：一项横断面描述性研究 显示英文标题

标题： Quality of life and perceived care of patients in advanced chronic kidney disease consultations: a cross-sectional descriptive study

摘要： 目标：在肾病患者的护理中，优先考虑其生活质量和护理是至关重要的。 研究将患者对护理质量的感知与改善的结果联系起来，如安全、临床效果、治疗依从性和预防措施。 本研究旨在评估这些患者的生活质量和护理感知，并探讨这些维度之间的潜在关联。 材料和方法：一项横断面描述性研究对43名参加晚期CKD诊所的患者进行了研究。 使用KDQOL-36问卷评估生活质量，而IECPAX问卷测量感知到的护理质量。 从患者记录中收集社会人口统计学和临床数据。 参与者在常规就诊期间完成问卷，分析得分以确定变量之间的关联。 结果：研究包括60%的男性（n=28）和32%的女性（n=15），平均年龄为78岁。 在参与者中，45%患有糖尿病，79%患有高血压，58%每天服用超过五种药物。 KDQOL-36的平均得分为78.76，IECPAX的平均得分为5.54。 在男性和女性的体力角色领域之间发现了显著差异（p=0.01），并且对于65岁以上的人群也发现了显著差异（p=0.04）。 较高的IECPAX得分与每天服用超过五种药物有关（p=0.05）。 然而，未观察到KDQOL-36和IECPAX得分之间的相关性。 结论：研究结果表明，在晚期CKD患者中，生活质量和感知到的护理质量是独立的。 尽管这项研究提供了见解，但仍需要更大规模的多中心研究来验证这些结果。 这些发现强调了分别处理这两个方面的重要性，以改善这一人群的结果。 显示英文摘要

摘要： Objetive: In the care of renal patients, prioritising their quality of life and nursing care is essential. Research links patients' perceptions of care quality to improved outcomes such as safety, clinical efficacy, treatment adherence, and preventive practices. This study aimed to evaluate the quality of life and care perception in these patients and explore potential associations between these dimensions. Material and methods: A cross-sectional descriptive study was conducted with 43 patients attending an advanced CKD clinic. Quality of life was assessed using the KDQOL-36 questionnaire, while the IECPAX questionnaire measured perceived care quality. Sociodemographic and clinical data were collected from patient records. Participants completed the questionnaires during routine visits, with scores analysed to identify associations between variables. Results: The study included 60% men (n=28) and 32% women (n=15), with a mean age of 78 years . Among participants, 45% were diabetic, 79% hypertensive, and 58% took more than five medications daily. Mean scores were 78.76 for KDQOL-36 and 5.54 for IECPAX. Significant differences were found in the physical role domain between men and women (p=0.01) and for individuals over 65 years (p=0.04). Higher IECPAX scores were associated with taking more than five medications (p=0.05). However, no correlation was observed between KDQOL-36 and IECPAX scores. Conclusions: The findings suggest that quality of life and perceived care quality are independent in advanced CKD patients. While this study provides insights, larger multicentre studies are needed to validate these results. These findings highlight the importance of addressing both aspects separately to improve outcomes in this population.